Long-term health outcomes of people living with spina bifida
Description
The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB
Eligibility
See official grant page for eligibility requirements
Industry Tags
About This Grant
The purpose of component A (8-11 awardees) of this NOFO is to collect high-quality longitudinal data on children and adults with spina bifida (SB) who receive care in specialized spina bifida clinics participating in the National Spina Bifida Patient Registry (NSBPR). The purpose of component B (6-8 awardees) is to implement and evaluate the Urologic Management to Preserve Initial Renal Function Protocol for Young Children with Spina Bifida (UMPIRE) iterative protocol which aims to improve the management of the urinary and kidney systems in infants and young children with myelomeningocele. Building on existing longitudinal data collection, recipients will continue to collect data on patients with SB to better understand health outcomes after interventions and treatments, analyze the data and share findings to identify opportunities for improvement of care. An additional objective for Component B is to finalize the UMPIRE protocol for children 0-10 years old with myelomeningocele. Sources of data are specialty clinics that care for pediatric and adult patients with SB
Funding Information
- Award Ceiling
- $300,000
- Award Floor
- $100,000
- Estimated Total Program Funding
- $3,000,000
- Expected Number of Awards
- 19
Eligibility Overview
This opportunity from Centers for Disease Control - NCBDDD is open to eligible applicants nationwide. Organizations working in Federal are especially encouraged to review the requirements.
Federal grant opportunities like this one are typically open to a range of applicant types. Common eligible organizations include:
- Nonprofits and 501(c)(3) organizations
- Small businesses and startups (especially for SBIR/STTR programs)
- State, local, and tribal governments
- Colleges, universities, and research institutions
- Individuals (for select programs in education, arts, and research)
Eligibility requirements vary by opportunity. Always review the official listing before investing time in an application.
How to Apply
- 1
Review the full opportunity
Read the complete Notice of Funding Opportunity (NOFO) for this Centers for Disease Control - NCBDDD program on its official page (https://www.grants.gov/search-results-detail/361002).
- 2
Confirm eligibility
Check that your organization meets every requirement set by Centers for Disease Control - NCBDDD — applicant type, location, registration status, and any prior-award restrictions.
- 3
Prepare required documents
Gather your budget narrative, needs statement, organizational details, SAM.gov registration, and any required certifications.
- 4
Submit before the deadline
This opportunity closes on October 26, 2026. Submit at least 48 hours early — portal systems are often slow near closing time.
Grant Writing Tips
Proposals for federal programs such as those from Centers for Disease Control - NCBDDD are competitive — these tips can strengthen your application:
- ✓Start your application at least 4 weeks before the deadline — rushed proposals score lower.
- ✓Tailor your needs statement to match the funder's stated priorities, using their exact language where possible.
- ✓Have a colleague outside your team review your budget narrative before submitting — fresh eyes catch errors reviewers penalize.
Frequently Asked Questions
Who is eligible for Long-term health outcomes of people living with spina bifida?
This opportunity from Centers for Disease Control - NCBDDD is open to eligible applicants nationwide. Organizations working in Federal are especially encouraged to review the requirements. Always confirm the full eligibility criteria on the official listing before applying.
How much funding does Long-term health outcomes of people living with spina bifida provide?
Award amounts for Long-term health outcomes of people living with spina bifida range from $100,000 to $300,000.
When is the deadline for Long-term health outcomes of people living with spina bifida?
The application deadline for Long-term health outcomes of people living with spina bifida is October 26, 2026. Submit at least 48 hours early to avoid last-minute portal issues.
How do I apply for Long-term health outcomes of people living with spina bifida?
Apply for Long-term health outcomes of people living with spina bifida through the official grant page (https://www.grants.gov/search-results-detail/361002). Confirm your eligibility and prepare your application materials before the deadline.
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